Rare disease patients spend an average of eight years searching for a diagnosis, and for some, that search can last decades. April Hudson of Quinton, Ala., began showing symptoms of an unknown disease at three years old. She would go on to see 200 physicians before finally learning the true cause of her symptoms nearly […]
Confusion, nausea, fever, anger, then back to normal. This was Lauren Vandiver’s life beginning in early childhood. Her parents, Phillip and Angela Vandiver, spent more than twenty years asking the question “why?” Why is she forgetting who we are? Why is she throwing up? Why is she so angry? They knew there had to be […]
Front Line Genomics, the media sponsor for this year’s Genomic Medicine Conference, highlighted the HudsonAlpha Hero Fund in the October issue of its magazine. “We knew there were many, many patients, both pediatric and adult, who would benefit from a molecular diagnosis, and who had not had the opportunity to go through that diagnostic process,” […]
Smith Family Clinic for Genomic Medicine and HudsonAlpha were recently featured in a special edition of Rare Revolution Magazine. Rare Revolution is a UK-based digital magazine giving a voice to patients affected by rare conditions and the charities that represent and support them. The September edition focused on genomics, clinical trials and rare disease […]
Huntsville, Ala. – HudsonAlpha Institute for Biotechnology is giving patients a chance at finding a diagnosis with the Hero Fund. Established by an anonymous donation to the HudsonAlpha Foundation, the Hero Fund helps patients at Smith Family Clinic for Genomic Medicine who need, but cannot afford, access to genomic medicine. Smith Family Clinic, powered by HudsonAlpha, […]
Jim Wall has struggled with back problems for more than 20 years, but just ignored the pain and accepted it as a part of life. “My sister used to tell me I had the ‘back walk’ and my wife used to tell me I walked around the house like Frankenstein,” said Jim. “Those were probably […]
Huntsville, Ala. — The HudsonAlpha Foundation has received a $1,050,000 anonymous donation to establish the Hero Fund. This fund will help patients who need, but cannot afford access to genomic medicine. The announcement was made Feb. 29, 2016 on Rare Disease Day. In November 2015, the HudsonAlpha Institute for Biotechnology opened the Smith Family Clinic […]
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The Smith Family Clinic for Genomic Medicine in Huntsville Alabama has been established to use the power of genomics to solve undiagnosed and misdiagnosed cases and provide answers to families and physicians. The clinic’s mission is to provide the best positive medical experience and the information to make future health care decisions.
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